Hear the story of someone living with IPF in this series of videos

Idiopathic pulmonary fibrosis, or IPF, is a disease that affects the lungs. It’s a serious condition that can take a long time to diagnose. While IPF is relatively rare, there are still many people suffering from this challenging disease.

In this series of videos, you can hear from three IPF patients about their journey since diagnosis, and how staying positive through interaction with support groups like ILFA and engaging in regular exercise has allowed them to live a more positive life with IPF.

1O suggestions to get started

  1. Decide a day to get started.
  2. Go for a walk. Start short distances, around the house or garden. Progress to outdoors.
  3. Use the “ 2OOO Steps A Day Exercise Challenge"
  4. Keep a walking diary.
  5. Join an exercise class.
  6. Listen to your body. If tired and breathless then slow down and, if needed, stop and rest.
  7. Use the ILFA STALL Breathing Technique to control your breathing if you get breathless
  8. If you are using any form of oxygen e.g. Oxygen concentrator, Portable Oxygen Cylinder or Portable Oxygen Concentrator, use your oxygen while exercising and increase the oxygen flow  if needed as directed by your healthcare professional.
  9. Be safe – carry mobile phone , wear your reflector vest.
  10. Every single step counts!